Good News. Bad News. Needle Blues.

Yesterday I had Lyme appointment #265. Just kidding. I honestly have no idea, but it feels like way too many.

At each appointment, my doctor tests my PH levels. When I started seeing this LLMD a year and a half ago, my “PH” was as bad as it gets. Yesterday it was close to the best you can get – 7.5. (8 is the best.)

Why is this important? An alkaline body can heal and fight infection better than an acidic body. When your body is in an acidic state, nothing works right. Lyme and co had caused my body to become totally acidic, which created a vicious cycle of having a sick body that couldn’t heal properly. I’m thankful to see signs of a healthy body again.

More good news… this was the first appointment that he didn’t hear any sign of a heart murmur. Lyme was starting to negatively affect my heart. If I hadn’t gotten IV antibiotics when I did, I don’t want to think of what could have happened. I know many doctors who want you to believe that Lyme is “easy to treat,” but that’s only if you find the bite and get antibiotics right away. The truth is that Lyme kills, even if it’s a slow tortuous death – it can kill you. Lyme Carditis is a real thing and I was getting on that crazy train.

If you heard screaming and swearing coming from O’Fallon today around 8:30am, that was me. I apologize… 

Today, I felt like this Lyme life was trying to kill me. My doctor changed my IV antibiotic to one that will target the Babesia and I was excited to start it. My nurse came out to do a dressing and needle change. It gets changed out once a week, and it’s usually pretty easy and I even know how to take the needle out myself. But on occasion, there have been some issues. The port may have moved or rotated under the skin or maybe it’s from scar tissue, but sometimes my nurse can’t get a blood return. It’s been pretty problematic off and on since I had the surgery and it’s a pain when it happens.

Today, after several sticks trying to gain access to the port and two needles, there was still no blood return. This happened a few weeks ago, and I had to give the port a break and get a regular IV in my arm for about a week. But my veins went on protest today and did not cooperate. They were difficult to find, then they blew, I was screaming and crying. It was awful and painful and my poor nurse still couldn’t get access. What a morning!

My body was so done and I was close to blacking out, so we will try agin in the morning. You know it’s bad when your nurse has to call for back-up. Hopefully, with two nurses and a less swollen port site, the port and/or my veins will cooperate and I can get started on my new antibiotic! Please pray for “easy access” and no crazy reactions to the new medicine! Also, please pray for my awesome nurses. I know all these complications are frustrating for them, too!

**Insurance is still denying coverage of my antibiotics, so we are appealing their decision – sending letters and doing what we can. Will keep you posted!

Thanks, for the love and prayers!

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