I am sure I have filled out hundreds of forms for doctors in my lifetime but the massive packet I’ve been working on for my Lyme appointment has caused some “a-ha” moments for me over the past few weeks. When the details and health history of Lyme is written down and checked off, it is obvious to me just how crazy and serious this illness really is. This symptom list about Neurological Lyme, in particular got my attention.
I didn’t have any “No’s” on the entire list. It was scary but oddly comforting to have a packet of information in my hands from a Lyme specialist who KNOWS that these are Lyme symptoms and wants to help. Not only does he believe Late Stage/Chronic Lyme exists, but he has dedicated his entire practice to Tick-Borne Disease to help those who have been outcast by other doctors who don’t know what to do with such symptomatic patients. It hurts to read these forms and see my symptoms laid out in black and white. It almost makes it too real. But to have it validated in such a strong, defining way brings comfort and encouragement.
These pictures were in Cammie’s school folder last week and they also bring me comfort and encouragement. When I asked her about them she said she was worried about me that day and wanted to tell her teacher about Lyme Disease.
She told her teacher that I take a lot of antibiotics for Lyme. Her teacher wanted to make sure I knew what she had written. 🙂
This says, “I am sorry that you are sick.”
It makes this mommy upset that my Kindergartener thinks about all of this when she is at school, but at the same time I love how it shows her overwhelming empathy and love. She has watched as I have been passionate about spreading awareness and education for Lyme. She has been with me in doctors offices who didn’t believe me and in turn, witnessed the days when I was forced to be my own advocate. She has heard me teaching others about this disease and here she is at school being an advocate for me and teaching her teachers about tick-borne disease. If only we could all learn to be this way for our family and friends. I learn so much from my girls. They inspire me to be a better mother, a more thoughtful friend and a more caring person. I am challenged to be more.
Who can you be an advocate for today? How can you be more in your life?